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The mission of PSC Partners Seeking a Cure Canada is to drive research to identify treatments and a cure for PSC, while providing education and support for those impacted by this rare disease.

Research

Finding treatments
for PSC

Funding

Raising funds for PSC research

Resources

Sharing Canadian-specific & PSC-related resources

Support

Helping individuals throughout their PSC journey

Awareness

Encouraging & facilitating conversations about PSC

Helping Canadians Navigate Living with PSC

Initial Diagnosis

Newly diagnosed with PSC? PSC Partners Canada provides resources and support to help understand this disease. Disease progression is different for each person, but it helps to know the basic facts.

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Living with PSC

Connecting with support groups and learning more about the condition can help manage the emotional and physical challenges of living with a chronic illness.

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Advancing PSC

As PSC advances, more serious complications can occur. Understanding, monitoring, and managing the signs of advanced PSC with your medical care team is crucial for timely intervention and medical care.

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Liver Transplant

Not all patients diagnosed with primary sclerosing cholangitis will need a liver transplant. For those who do, it can be a chance for an improved quality of life. Many liver transplant patients notice positive changes just hours after surgery.

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Caregivers and Family

Caregivers and family are an essential support system for those living with PSC. Ideally, supporting someone with PSC involves balancing your own well-being while managing PSC-related challenges.

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Research and Information

In addition to driving research for treatments and a cure for PSC, PSC Partners Canada actively works to connect those affected by PSC with cutting-edge research and clinical trials.

Latest News and Events

Support group meeting on loss, February 3, 2025.
ZoomRoom – Living with Loss and Carrying on the Spirit

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For those who are navigating the loss of a loved one from PSC, this virtual peer-to-peer support group is a great way to connect with others who truly understand what you are going through. Registration is required.

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Person sleeping on cushioned outdoor swing.
Webinar – Fatigue in PSC : Leveraging scientific discovery to improve well-being

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Mark your calendar because you don’t want to miss this informative and engaging webinar about fatigue with PSC, led by Dr. Mark Swain. Registration is required.

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Teen ZoomRoom – For Teens age 13 -18

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This virtual peer-to-peer get together will provide an opportunity to connect with fellow teens aged 13-18 who are living with PSC. Registration is required.

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Patient Stories

Explore the personal journeys of individuals living with PSC and find inspiration in their stories. Connect with those who truly understand PSC and gain valuable insights from their experiences. Discover a community offering hope, guidance, and encouragement. Each story is unique, offering new perspectives and shared strength.

Get Involved

Volunteer

Make a difference with PSC Partners Canada—whether by mentoring, helping at events, writing, or fundraising, every volunteer role strengthens and supports the PSC community.

Volunteer

Donate

Donations fuel PSC Partners Canada’s mission to drive research toward treatments and a cure. Together, a brighter future can be created for everyone impacted by PSC.

Donate

Patient Registry

By contributing health information to the PSC Patient Registry, participants help researchers better understand PSC. More data can accelerate progress toward effective treatments and a cure.

Register

Support

PSC Partners Canada offers a community where people can share experiences, find advice, and connect with others who truly understand the challenges of living with PSC.

Support