Get Involved
Become part of the Canadian PSC community! As a patient, caregiver, or family member, you can make a difference.
Get involved with PSC Partners Canada and make a powerful difference. Whether you join a support group, attend our events, contribute to the Patient Registry, participate in a clinical trial, volunteer your time, or make a donation, your actions can change lives. Together, we’re working toward a future where PSC no longer limits a fulfilling life.
Support
PSC Partners Events
Attending a conference, a meetup, or webinar event provides those who are affected by PSC the opportunity to gain a deeper understanding of the disease. Hear from expert speakers about the latest research on treatments, procedures and scientific developments in the understanding of PSC. Additionally, In-person events provide an invaluable opportunity to connect with others.
Patient Registry
Join the Registry! Through the PSC Partners Patient Registry you can provide researchers the data needed to drive PSC research, clinical trials, and progress toward effective treatments and, ultimately, a cure. A larger registry provides more meaningful insights for researchers worldwide. Each participant’s information is crucial.
Clinical Trials
Patient participation in clinical trials and research studies is essential for advancements in PSC research and drug development. Participants may receive specific treatments, like medications, procedures, or lifestyle changes, following a set research protocol. By providing their input through clinical surveys, participants also bring the voice of those living with PSC directly to researchers, helping advance critical discoveries.
Volunteer
Donate
Donations are essential to advancing PSC research and finding effective treatments. As a rare disease, PSC receives limited funding. Every contribution plays a crucial role in driving research forward. With support from donors, PSC Partners Canada can continue working toward better therapies and, ultimately, a cure.
