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The Loon Duct e-newsletter helps the PSC Community in Canada stay up to date on upcoming events, research, and other PSC news. Emailed quarterly, the newsletter also highlights people’s stories about their experiences living with PSC.

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Most Recent Issue: June 2025

In the June 2025 issue of The Loon Duct, read about highlights from the Toronto and Vancouver events hosted by PSC Partners Canada, upcoming Edmonton and Montreal events, good news from the NCA clinical trial in Europe, Canadian research updates, and more.

Read The Loon Duct

Many thanks to The Loon Duct volunteers!

  • 2023-Present Editors: Kristian Stephens and Matt Hodgson.
  • 2021-2022 Editors: Kristian Stephens and Jennifer Stephens.
  • 2019-2020 Editors: Jessica Travis and Meg Ramore.

Contributing authors: Virve Aljas, Kristian Stephens, Jennifer Stephens, Jessica Travis.

If you’d like to join The Loon Duct team, please email us at [email protected].

Related News and Events

Edmonton – What the Cell?! On Tour: A Canadian PSC Patient Event

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Location Near Edmonton, AB: Best Western Premier Denham Inn & Suites 5207 50th Avenue Leduc, T9E 6V3

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2025 Edmonton PSC patient & caregiver event. Learn about PSC & promising PSC research. Enjoy lunch & opportunities for peer support and community building. Advanced registration required.

Zoom Room – Living with Loss and Carrying on the Spirit

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Grieving the loss of a loved one to PSC can feel isolating, but you don’t have to go through it alone. Join this upcoming ZoomRoom to connect with others who truly understand.

Zoom Room All Groups
Zoom Room For All Groups

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Experience the strength of shared understanding in PSC Partners virtual Zoom Room—a supportive space to connect, build community, and remind each other that we’re not alone on this journey. Registration is required.

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