Webinar: A Collective Voice for Change: How You Can Shape PSC Research
Do you or someone you love live with PSC? Your story matters—and it can make a real difference in pushing research forward.
Join us for an important and inspiring webinar to learn how your voice and experiences can help shape the future of PSC research.
Tuesday, April 22
6:00 PM MT / 8:00 PM ET
Live on Zoom
What’s this about?
This webinar will show how you can get involved in PSC research and why your participation matters—especially through the PSC Partners Patient Registry.
Speakers from PSC Partners include:
Sarah Curup Callif, Director Research Program – Sharing how your personal journey helps guide PSC research.
Rachel Gomel, Senior Advisor and Board Member , Mary Vyas, VP Strategic Initiatives, and Brian Thorsen, Assistant Registry Director – How the Patient Registry works and how it helps researchers hear your voice. Interactive session to explore features of the Registry platform
We’ll also have a live Q&A, so you can ask questions and share your thoughts.
Why should you come?
Because every person with PSC has a piece of the puzzle. When you take part in PSC research, you help attract new studies and clinical trials. Your voice can reach scientists and doctors around the world. In a rare disease community like ours, everyone’s story counts. Don’t wait for someone else to speak up—you can help drive change. Join us to learn how.
Edmonton, AB 
