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The Connected-to-Care Summits are regional, educational meetings designed to strengthen patient advocacy, clinical coordination, and research engagement for PSC. Our goal is to reduce barriers to care and create a scalable model for coordinated PSC support and education.

Advance registration is required. Available in English only. For more information, visit the Connected-to-Care Summits webpage.

REGISTRATION HASN’T OPENED YET.

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This virtual peer-to-peer get-together is an opportunity to connect with fellow teens aged 13-19 who are living with PSC. Registration is required.

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Get Involved

Volunteer

Help make a difference and support the PSC community

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Fund research towards treatments and a cure for PSC

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Patient Registry

Provide data to help researchers better understand PSC

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Support

Share experiences, find advice, and connect with others 

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