Survey Results: Oral Vancomycin and Insurance Coverage
PSC Partners received a direct request from patients to survey the PSC patient community on their experience with insurance coverage of their medication, particularly oral vancomycin, in advance of Rare Disease Day, February 28, 2023. This data will be used in part to inform legislative advocacy in support of HR6160, Access to Rare Indications Act of 2021.
A short, IRB-approved survey was administered through the PSC Partners Patient Registry. The survey was open for 5 days in February 2023 (February 22 – February 26).
Version 3 of the Survey Results can be downloaded as a pdf below. Thank you!