23 hours ago

PSC Partners Seeking a Cure Canada

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I'm sure we can all use some help coping. Join CALD and AIHA in this free webinar brought to the autoimmune liver disease community.๐˜พ๐™Š๐™‘๐™„๐˜ฟ-๐Ÿญ๐Ÿต ๐™๐™ง๐™ค๐™ฃ๐™ฉ๐™ก๐™ž๐™ฃ๐™š ๐™๐™š๐™ฅ๐™ค๐™ง๐™ฉ: ๐˜พ๐™ค๐™ฅ๐™ž๐™ฃ๐™œ ๐™ฌ๐™ž๐™ฉ๐™ ๐™ฉ๐™๐™š ๐˜พ๐™ง๐™ž๐™จ๐™ž๐™จ

๐—™๐—ฟ๐—ฒ๐—ฒ ๐—ช๐—ฒ๐—ฏ๐—ถ๐—ป๐—ฎ๐—ฟ

๐Ÿฑ ๐—ฝ.๐—บ. ๐—˜๐—ฆ๐—ง, ๐— ๐—ผ๐—ป๐—ฑ๐—ฎ๐˜†, ๐—”๐—ฝ๐—ฟ๐—ถ๐—น ๐Ÿญ๐Ÿฏ ๐—ผ๐—ป ๐˜๐—ต๐—ฒ ๐—”๐˜‚๐˜๐—ผ๐—ถ๐—บ๐—บ๐˜‚๐—ป๐—ฒ ๐—›๐—ฒ๐—ฝ๐—ฎ๐˜๐—ถ๐˜๐—ถ๐˜€ ๐—”๐˜€๐˜€๐—ผ๐—ฐ๐—ถ๐—ฎ๐˜๐—ถ๐—ผ๐—ปโ€™๐˜€ ๐—™๐—ฎ๐—ฐ๐—ฒ๐—ฏ๐—ผ๐—ผ๐—ธ ๐—ฝ๐—ฎ๐—ด๐—ฒ

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The second webinar in our series, titled ๐˜๐˜ณ๐˜ฐ๐˜ฏ๐˜ต๐˜ญ๐˜ช๐˜ฏ๐˜ฆ ๐˜™๐˜ฆ๐˜ฑ๐˜ฐ๐˜ณ๐˜ต: ๐˜Š๐˜ฐ๐˜ฑ๐˜ช๐˜ฏ๐˜จ ๐˜ธ๐˜ช๐˜ต๐˜ฉ ๐˜ต๐˜ฉ๐˜ฆ ๐˜Š๐˜ณ๐˜ช๐˜ด๐˜ช๐˜ด, will feature two psychologists who will provide both adult and pediatric patients and families with tips to handle these stressful times. Weโ€™ll also give a brief update on new developments in the pandemic and the latest news that autoimmune liver disease patients need to know.

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What are you struggling with most during these times of social distancing and stay-at-home orders as a patient, parent, or even a caregiver? How can we help? ๐—ฃ๐—น๐—ฒ๐—ฎ๐˜€๐—ฒ ๐˜€๐˜‚๐—ฏ๐—บ๐—ถ๐˜ ๐˜†๐—ผ๐˜‚๐—ฟ ๐—พ๐˜‚๐—ฒ๐˜€๐˜๐—ถ๐—ผ๐—ป๐˜€ ๐—ณ๐—ผ๐—ฟ ๐—ผ๐˜‚๐—ฟ ๐—ด๐˜‚๐—ฒ๐˜€๐˜ ๐—ฝ๐˜€๐˜†๐—ฐ๐—ต๐—ผ๐—น๐—ผ๐—ด๐—ถ๐˜€๐˜๐˜€ ๐—ฎ๐—ป๐—ฑ ๐—ถ๐—ป๐—ณ๐—ฒ๐—ฐ๐˜๐—ถ๐—ผ๐˜‚๐˜€ ๐—ฑ๐—ถ๐˜€๐—ฒ๐—ฎ๐˜€๐—ฒ ๐—ฒ๐˜…๐—ฝ๐—ฒ๐—ฟ๐˜ ๐—ฏ๐˜† ๐—ฒ๐—บ๐—ฎ๐—ถ๐—น๐—ถ๐—ป๐—ด ๐—ถ๐—ป๐—ณ๐—ผ@๐—ฎ๐—ถ๐—ต๐—ฒ๐—ฝ.๐—ผ๐—ฟ๐—ด ๐—ฏ๐˜† ๐Ÿฑ ๐—ฝ.๐—บ. ๐—ง๐—ต๐˜‚๐—ฟ๐˜€๐—ฑ๐—ฎ๐˜†, ๐—”๐—ฝ๐—ฟ๐—ถ๐—น ๐Ÿต.

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The Autoimmune Hepatitis Association (AIHA) is hosting this free bi-weekly webinar series called ๐˜ˆ๐˜ถ๐˜ต๐˜ฐ๐˜ช๐˜ฎ๐˜ฎ๐˜ถ๐˜ฏ๐˜ฆ ๐˜“๐˜ช๐˜ท๐˜ฆ๐˜ณ ๐˜‹๐˜ช๐˜ด๐˜ฆ๐˜ข๐˜ด๐˜ฆ ๐˜ข๐˜ฏ๐˜ฅ ๐˜ต๐˜ฉ๐˜ฆ ๐˜Š๐˜–๐˜๐˜๐˜‹-19 ๐˜—๐˜ข๐˜ฏ๐˜ฅ๐˜ฆ๐˜ฎ๐˜ช๐˜ค: ๐˜๐˜ณ๐˜ฐ๐˜ฏ๐˜ต๐˜ญ๐˜ช๐˜ฏ๐˜ฆ ๐˜™๐˜ฆ๐˜ฑ๐˜ฐ๐˜ณ๐˜ต in partnership with the Center for Autoimmune Liver Disease at Cincinnati Children's Hospital (CALD).
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5pm tonight. See you there. ...

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Looking for answers about $ in this time? Federal and provincial resources here. Thanks Professor Jennifer Robson, Carleton, for compiling and updating.

Financial support, sick leave, caregiver, unemployment + other info about benefits

drive.google.com/file/d/1lOJn7XS6ETIkbLRodYk681M_2dxkkQsc/view
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Ped PSC and AIH resources from our friends and trusted sources! thank you CALD and AIHA!Weโ€™re excited to announce the Autoimmune Hepatitis Association (AIHA) will host a free bi-weekly webinar series called Autoimmune Liver Disease and the COVID-19 Pandemic: Frontline Report.

In partnership with the Center for Autoimmune Liver Disease at Cincinnati Children's Hospital, weโ€™ll summarize the latest COVID-19 research and provide the most important information for patients and their families.

Our first webinar, Immunosuppression and COVID-19: Is there risk?, will be at 5 p.m. EST this coming Monday, March 30 and can be accessed using Zoom at the following link: iu.zoom.us/j/997117272. We encourage you to submit questions in advance by emailing info@aihep.org by noon on Sunday.

The webinar will give an overview of the pandemic, dig into the risks for adult and pediatric autoimmune liver disease patients, share more about the impact of taking immunosuppressants during infectious disease outbreaks, and field questions from our members.

Guest presenters include:

Aaron Ermel, M.D., Assistant Professor of Medicine at Indiana University School of Medicine: infectious diseases.

Alexander Miethke, M.D., Associate Professor of Medicine at University of Cincinnati: pediatric hepatology and liver transplant.

Marwan Ghabril, M.D., Professor of Medicine at Indiana University School of Medicine: adult hepatology and liver transplant.

AIHA Executive Director Craig Lammert, M.D., a hepatologist at Indiana University School of Medicine, and Erin Anderson, Director of Programs and Advancement for the AIHA, will moderate the session.

Weโ€™ll hope youโ€™ll consider joining us by Zoom: iu.zoom.us/j/997117272. Participants in the U.S. can also access the webinar by phone. Dial 1-312-626-6799 (meeting ID number is 997 117 272).
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PSC Connect Day! We all need extra connection in these challenging times.

Please join PSC Partners Canada for a PSC Connect Virtual Canada Meetup at PSC Partners Canada zoom room.

Today 6pm EST.

Complete this form to receive an emailed zoom room invitation. forms.gle/fUCCZSPsZ5R6UUFq6#PSCPartners2020 PSC Partners Seeking a Cure Canada
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In case you missed it, the March edition of the Loon Duct went out last week. You can find it on the PSC Partners Canada site

pscpartners.ca/index.php/newsletters/
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Great advice from one of Canadaโ€™s experts on isolation. โ€œHappy Landings!โ€ ...

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More Canadian resources about COVID-19: a webinar about COVID-19 AND IBD, from Crohn's and Colitis Canada. French subtitles will be available shortly.

bit.ly/3a0C20B.
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If you missed yesterday's webinar, we've got you covered. Grab a cup of coffee or tea, prop your feet up, and listen to three medial experts discuss PSC/IBD and COVID-19 (coronavirus).

youtu.be/UMjy2N49ij4If you missed yesterday's webinar, we've got you covered. Grab a cup of coffee or tea, prop your feet up, and listen to three medial experts discuss PSC/IBD and COVID-19 (coronavirus).
youtu.be/UMjy2N49ij4
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If you missed yesterday's webinar, we've got you covered. Grab a cup of coffee or tea, prop your feet up, and listen to three medial experts discuss PSC/IBD and COVID-19 (coronavirus).
youtu.be/UMjy2N49ij4
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JOIN US!

PSC/IBD & COVID-19 (coronavirus):
WHAT YOU WANT TO KNOW
Free Webinar with Three Medical Experts

Join us this Thursday, March 19, 7 p.m. EST, for an interactive webinar discussing the COVID-19 pandemic as it relates to primary sclerosing cholangitis (PSC).
PSC Partners is offering this event free-of-charge.

The three experts answering questions and providing advice are:
Dr. Gideon Hirschfield, Hepatologist, Toronto General Hospital
Dr. Josh Korzenik, Gastroenterologist, Brigham and Women's Hospital
Dr. Jerome Schofferman, Retired Internist and Post-Transplant PSC Patient

Use the information below to join the webinar.
Please click the link below to join via computer:
zoom.us/j/181609187

Webinar ID: 181 609 187

To call via phone in the U.S., dial US: +1-346-248-7799
To call via phone in Canada, dial 1-778-907-2071

For other international phone numbers, click here:
zoom.us/u/acHYQOceA9

BE SURE TO JOIN A FEW MINUTES EARLY, SO YOU ARE ABLE TO GO THROUGH THE NECESSARY STEPS TO JOIN THE WEBINAR.
Click here for Zoom instructions, if you need help.

Please send questions in advance to: contactus@pscpartners.org.
Questions must be received by Wed., March 18, at 10 p.m. ESTPSC/IBD & COVID-19 (coronavirus):
WHAT YOU WANT TO KNOW
Free Webinar with Three Medical Experts

Click here for information on our website: pscpartners.org/psc-and-covid-19/

Join us this Thursday, March 19, 7 p.m. EST, for an interactive webinar discussing the COVID-19 pandemic as it relates to primary sclerosing cholangitis (PSC) and Irritable Bowel Syndrome (IBD).

PSC Partners is offering this event free-of-charge. (If you can't join in person, this session will be recorded and posted on our website.)

The three experts answering questions and providing advice are:
Dr. Gideon Hirschfield, Hepatologist, Toronto General Hospital
Dr. Josh Korzenik, Gastroenterologist, Brigham and Women's Hospital
Dr. Jerome Schofferman, Retired Internist and Post-Transplant PSC Patient

Use the information below to join the webinar.
Please click the link below to join via computer:
zoom.us/j/181609187

Webinar ID: 181 609 187

To call via phone in the U.S., dial US: +1-346-248-7799
To call via phone in Canada, dial 1-778-907-2071

For other international phone numbers, click here:
zoom.us/u/acHYQOceA9

BE SURE TO JOIN A FEW MINUTES EARLY, SO YOU ARE ABLE TO GO THROUGH THE NECESSARY STEPS TO JOIN THE WEBINAR.
Click here for Zoom instructions, if you need help.

Please send questions in advance to: contactus@pscpartners.org.
Questions must be received by Wed., March 18, at 10 p.m. EST PSC Partners Seeking a Cure Canada
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One of the core beliefs of this program is the power of collaboration. PSC Partners Canada is working jointly with PSC Partners to make the most of this opportunity from CZI for the PSC community everywhere.

So excited to have Priscilla Chan welcome us to the first Rare as One gathering. It may have been switched to a virtual gathering, but her message from an MD's perspective about learning from patients about rare disease is powerful!

#RareasOne
@cziscience
#PSCPartners #PSC
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Timeline PhotosHow does gender influence the transplant experience? For our March Lunch & Learn, @MamathaBhat3 discusses her research on Gender Disparities in Liver Transplantation & Living Organ Donation. Register โžก๏ธhttp://ow.ly/IRBE50yF4Yu

#genderequity #healthcare @UHNwomen
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AND NOW FOR A BIT OF GOOD NEWS...
Please mark your calendars for the 2021 PSC Partners Annual Conference, June 11-13, 2021, Boston, MA. We are excited to collaborate with Dr. Josh Korzenik, Brigham and Womenโ€™s Hospital, and Dr. Dan Pratt, Massachusetts General Hospital, for this event. The conference hotel is the Boston Marriott Burlington, Burlington, MA, just 19 miles from Bostonโ€™s Logan Airport.

More info. will be available soon. To ensure you're up to date on this conference and other PSC Partners news, join our email list. conta.cc/2W14oUf

SEE YOU IN BOSTON IN 2021!

#PSCPartners2021 #PSC Brigham and Women's Hospital massgeneral_ #LiverDisease
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This clinical trial for adult PSC patients is also recruiting in Canada! Alberta and Ontario. Visit the High Tide site at www.pscclinicaltrials.com/ for more specifics. Canadian site contacts are below in the comments, and can be found on clinicaltrials.gov/ct2/show/NCT03333928.

Talk to your doctor to see if this is for you!Check out this clinical trial that is being conducted in 22 centers for PSC. The clinical trial website has details on how to contact them.
"HTD1801, berberine ursodeoxycholate, is an oral investigational drug developed by HighTide to treat Primary Sclerosing Cholangitis. The Food and Drug Administration (FDA) granted HighTide โ€œFast Trackโ€ designation for HTD1801 in the treatment of PSC, in recognition that HTD1801 has the potential to address an unmet medical need based on data shared with the FDA. To our knowledge, HTD1801 is the only drug to receive fast track designation for PSC."

www.pscclinicaltrials.com/index/index/htd.html
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Charitable Donations and Canadian Income Taxesby Tom Wright, CPA CA

The Loon Duct and Partners Seeking a Cure Canada do not claim to provide income tax advice to our readers, but there are some basics that you should consider, and perhaps review with your tax adviser.

Canadians donate to charities to assist them in their good works. Canadian income tax rules help us to give that assistance by allowing tax credits based on the size of our donations. These credits help us to reduce the net cash cost of a donation.

How Donations to Registered Charities Affect your Income Taxes

Donations provide tax credits, not subtractions from taxable income. Pretty democratic: your tax reduction is based solely on the size of your donation, not your income. Donors in all income tax brackets get about the same credits for their donations.

First time donor?โ€‹ If you have never donated before, you are entitled to the super credit! Your tax bill will be reduced by 40% of your donation up to $200 and 54% of up to the next $800. Your total tax reduction would be over $500 on a donation of $1,000. A great way to start a great practice.

Repeat donor?โ€‹ Donations totaling up to $250 will provide income tax reductions of about 20% in most provinces. Tax reduction on the amount of your donation over $250 will be from 45% to 50%, again depending on your province of residence.

A tip:โ€‹ Are you and your domestic partner both making charitable contributions? Consider claiming both sets of donations on one partner’s tax return: you’ll get to the $250 threshold quicker and move into the higher credit bracket sooner.

Here’s a big one: โ€‹Are you estate planning, and want to benefit a charity or charities in your lifetime to see the benefits of your donations? Considering donating “appreciated securities”. “Securities” in this context generally means shares in a company, bonds or mutual funds listed on a recognized stock exchange. “Appreciated” means securities worth more than their “adjusted cost base”, which is basically what you paid for them plus any reinvested dividends. If you sell those securities to generate cash for a donation, you will pay income tax up to 27% on the appreciation and therefore have less money left over to donate.

However, if you give those appreciated securities directly to charity, there is no income tax on the appreciation and you will receive a donation receipt for the full value of the securities. Remember our note above? Your tax bill will be reduced by 45-50% of the donation receipt. So you will have more cash to help fulfill your other estate planning priorities.

PSC Partners Canada works with the chimp:Charitable Impact Foundation to accept such donations directly. If you or a loved one wish to make such a donation, contact us at โ€‹contactus@pscpartners.ca and we can help you with the mechanics.

To Claim your Credit: Keep your tax receipts from donations to registered charities! If you donate to PSC Partners Canada directly (by writing a cheque payable to PSC Partners Seeking a Cure Canada) we will send you a receipt. If you donate online, your tax receipt will come from our partner, chimp:Charitable Impact Foundation.

PSC Partners Seeking a Cure Canada, 3 - 585 Dundas Street East, Toronto, M5A 2B7
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PSC Partners is hosting a Patient Focused Drug Development (PFDD) meeting on Fri., Oct. 23, 2020, in Wash., D.C., area. Mark your calendars. Everyone encouraged to attend.

Additionally, we will be putting together one pediatric (either older kids or a parent) and two adult panels. Interested? Please send one-page story (approx. 500 words or less) to contactus@pscpartners.org.

Whether you're selected or not, we hope you'll come. Numbers matter, and there will be lots of opportunity to share. Questions? contactus@pscpartners.org.
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HighTide Therapeutics is currently recruiting PSC patients for this trial in Alberta and Ontario. Contacts in the comments.HighTide Therapeutics is still recruiting PSCers for their Phase 2 trial. Interested patients can contact HighTide at clinical.trials@hightidetx.com and their team will respond to help patients connect with the nearest investigator.To find out details about the trial, check out clinicaltrials.gov/ct2/show/NCT03333928?term=HTD-1801&draw=2&rank=4 ...

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Happy Valentine's Day!

Valentineโ€™s Day is a great day to focus on charity, generosity, and love of others! There are things you can do to create an impact in the name of love this Valentine's, including:

โค๏ธ Rally loved ones around a cause
๐Ÿ’› Send charitable dollars as sweet valentines
๐Ÿ’š Treat yourself

This is a perfect day to set up a recurring donation to PSC Partners or PSC Partners Canada to demonstrate your ongoing support of those affected by PSC. And to support the ultimate gift: TO FIND A CURE!

Visit this link to make your Valentine's donation:

my.charitableimpact.com/campaigns/psc-partners-canada-ongoing-campaign
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Tune in tomorrow, Tuesday, if you have interest in how Canadian federal price controls may affect those with rare diseases, and those who need access to newly developed drugs. Live streamed starting at 12:20pm Tues Feb 4.Millions of Canadian lives are at stake as new federal medicine price controls are set to kick in. To learn more, join @durhane @tomclarkGPA @macleodscanada @DrYvesBolduc and Prof Tania Stafinski at #fightforourlives ECC panel tomorrow (Feb4): bit.ly/FightForOurLivesCanada - live streamed starting 12:20pm @ bit.ly/TheFightForOurLives #cdnpoli #PMPRB ...

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Great news!Exciting news! We're overjoyed to announce that we applied for and were accepted to be part of the Chan Zuckerberg Initiativeโ€™s #RareAsOne Network โ€” a group of 30 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. www.RareAsOne.org
More details to come, but, for now, say it with us...Woo Hoo!
#PSC2020 #RareDisease #PSC #PSCPartners
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Today!Grab your lunch and join us for a panel presentation and discussion on Health Equity, Living Donation & Transplantation!

You're be able to submit discussion questions via Facebook Live, or just sit back and listen to the conversation. See you at 12:15!

Speakers
1. Sonali Pendharkar, Transplant Social Work: Patient Pathway (access to health services)

2. Margot Mitchell, Transplant Social Work: Income, Employment, Social Support

3. Sinthu Srikanthan, Social Work: Language, Culture, Health Literacy

4. Mridula Sury, Listed Liver Coordinator for Transplant Recipients: Patient "Non Complianceโ€

UHN Transplant Centre
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A message from your Loon Duct newsletter team! ...

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Public appeal for a liver donor for a PSCer in Ontario. Please share.

"Jeff Hall, my husband, is about to be added to the transplant list in Toronto and needs a living liver donor. Blood type O+ or O-. A living donor can give a piece of their liver and save his life. It grows back!"

Visit liver2savejeff.com.
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Big news! More details in the next Loon Duct!Congrats to the new human immunology research team from University Health Network, SickKids Foundation and University of Toronto and the amazing PSC Partners Seeking a Cure Canada for the Canadian Institutes of Health Research funded study to better understand the immunology of PSC.

Toronto General & Western Hospital Foundation
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Canadians! This is a worldwide PSC patient registry. If you haven't already, check it out!Hey, PSCers, if you're searching for a New Year's resolution, we've got a nifty one that will only take you about 30 minutes to complete.

Join the PSC Partners registry. Your data will help in the search for treatments and a cure for primary sclerosing cholangitis (PSC). Thanks a million, and happy new year!
pscpartners.org/patient-registry/
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Charitable Donations and Canadian Income Taxesby Tom Wright, CPA CA

The Loon Duct and Partners Seeking a Cure Canada do not claim to provide income tax advice to our readers, but there are some basics that you should consider, and perhaps review with your tax adviser.

Canadians donate to charities to assist them in their good works. Canadian income tax rules help us to give that assistance by allowing tax credits based on the size of our donations. These credits help us to reduce the net cash cost of a donation.

How Donations to Registered Charities Affect your Income Taxes

Donations provide tax credits, not subtractions from taxable income. Pretty democratic: your tax reduction is based solely on the size of your donation, not your income. Donors in all income tax brackets get about the same credits for their donations.

First time donor?โ€‹ If you have never donated before, you are entitled to the super credit! Your tax bill will be reduced by 40% of your donation up to $200 and 54% of up to the next $800. Your total tax reduction would be over $500 on a donation of $1,000. A great way to start a great practice.

Repeat donor?โ€‹ Donations totaling up to $250 will provide income tax reductions of about 20% in most provinces. Tax reduction on the amount of your donation over $250 will be from 45% to 50%, again depending on your province of residence.

A tip:โ€‹ Are you and your domestic partner both making charitable contributions? Consider claiming both sets of donations on one partner’s tax return: you’ll get to the $250 threshold quicker and move into the higher credit bracket sooner.

Here’s a big one: โ€‹Are you estate planning, and want to benefit a charity or charities in your lifetime to see the benefits of your donations? Considering donating “appreciated securities”. “Securities” in this context generally means shares in a company, bonds or mutual funds listed on a recognized stock exchange. “Appreciated” means securities worth more than their “adjusted cost base”, which is basically what you paid for them plus any reinvested dividends. If you sell those securities to generate cash for a donation, you will pay income tax up to 27% on the appreciation and therefore have less money left over to donate.

However, if you give those appreciated securities directly to charity, there is no income tax on the appreciation and you will receive a donation receipt for the full value of the securities. Remember our note above? Your tax bill will be reduced by 45-50% of the donation receipt. So you will have more cash to help fulfill your other estate planning priorities.

PSC Partners Canada works with the chimp:Charitable Impact Foundation to accept such donations directly. If you or a loved one wish to make such a donation, contact us at โ€‹contactus@pscpartners.ca and we can help you with the mechanics.

To Claim your Credit: Keep your tax receipts from donations to registered charities! If you donate to PSC Partners Canada directly (by writing a cheque payable to PSC Partners Seeking a Cure Canada) we will send you a receipt. If you donate online, your tax receipt will come from our partner, chimp:Charitable Impact Foundation.

PSC Partners Seeking a Cure Canada, 3 - 585 Dundas Street East, Toronto, M5A 2B7
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4 months ago

PSC Partners Seeking a Cure Canada

Charitable Donations and Canadian Income Taxesby Tom Wright, CPA CA

The Loon Duct and Partners Seeking a Cure Canada do not claim to provide income tax advice to our readers, but there are some basics that you should consider, and perhaps review with your tax adviser.

Canadians donate to charities to assist them in their good works. Canadian income tax rules help us to give that assistance by allowing tax credits based on the size of our donations. These credits help us to reduce the net cash cost of a donation.

How Donations to Registered Charities Affect your Income Taxes

Donations provide tax credits, not subtractions from taxable income. Pretty democratic: your tax reduction is based solely on the size of your donation, not your income. Donors in all income tax brackets get about the same credits for their donations.

First time donor?โ€‹ If you have never donated before, you are entitled to the super credit! Your tax bill will be reduced by 40% of your donation up to $200 and 54% of up to the next $800. Your total tax reduction would be over $500 on a donation of $1,000. A great way to start a great practice.

Repeat donor?โ€‹ Donations totaling up to $250 will provide income tax reductions of about 20% in most provinces. Tax reduction on the amount of your donation over $250 will be from 45% to 50%, again depending on your province of residence.

A tip:โ€‹ Are you and your domestic partner both making charitable contributions? Consider claiming both sets of donations on one partner’s tax return: you’ll get to the $250 threshold quicker and move into the higher credit bracket sooner.

Here’s a big one: โ€‹Are you estate planning, and want to benefit a charity or charities in your lifetime to see the benefits of your donations? Considering donating “appreciated securities”. “Securities” in this context generally means shares in a company, bonds or mutual funds listed on a recognized stock exchange. “Appreciated” means securities worth more than their “adjusted cost base”, which is basically what you paid for them plus any reinvested dividends. If you sell those securities to generate cash for a donation, you will pay income tax up to 27% on the appreciation and therefore have less money left over to donate.

However, if you give those appreciated securities directly to charity, there is no income tax on the appreciation and you will receive a donation receipt for the full value of the securities. Remember our note above? Your tax bill will be reduced by 45-50% of the donation receipt. So you will have more cash to help fulfill your other estate planning priorities.

PSC Partners Canada works with the chimp:Charitable Impact Foundation to accept such donations directly. If you or a loved one wish to make such a donation, contact us at โ€‹contactus@pscpartners.ca and we can help you with the mechanics.

To Claim your Credit: Keep your tax receipts from donations to registered charities! If you donate to PSC Partners Canada directly (by writing a cheque payable to PSC Partners Seeking a Cure Canada) we will send you a receipt. If you donate online, your tax receipt will come from our partner, chimp:Charitable Impact Foundation.

PSC Partners Seeking a Cure Canada, 3 - 585 Dundas Street East, Toronto, M5A 2B7
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On the fourth day of Christmas...

Please consider a donation to PSC Partners Canada to enable researchers to find a cure and to make the year-end challenge matching grant of $30,000! pscpartners.ca/35-2/ to see ways to donate!

From our hilarious Canadian friend/author/PSC and transplant advocate, Laura Bradbury:

The Twelve Days of Christmas for PSCers

1. Subscription to Disney + (can anyone say Star Wars Marathon, plus who can feel bad when Baby Yoda is on the screen?)

2. Red or Camouflage bed-sheets for when the night itching gets bad

3. A journal so you can write about your worries, but especially your hopes and dreams

4. A donation to PSC Partners Canada to enable researchers to find a cure and to make the year-end challenge matching grant of $30,000! my.charitableimpact.com/campaigns/psc-partners-
canada-year-end-campaign

5. An afternoon laughing so hard with old friends that your stomach hurts, in a good way

6. A massive electric heating pad (life saver for All The PSC Aches)

7. A sugar cookie, because living with PSC can be hard and we deserve a treat

8. An indulgent bath complete with Epsom Salts, candles, and a lock on the door

9. Books on Hygge โ€“ the Scandinavian โ€œcozy cultureโ€ โ€“ perfect for โ€œspooniesโ€

10. A large, beautiful mug for coffee (good for your liver!), tea, but hopefully not Lactulose (save your ugliest plastic glasses for that)

11. An appreciation of the ridiculous and a twisted sense of humor for certain medical situations (i.e. colonoscopy prepโ€ฆ โ€œGo-litelyโ€ is the biggest misnomer out there)

12. Taking five minutes to sign up for the PSC registry to ensure researchers get and stay interested in finding better treatments or indeed a cure for PSC. Just click here: pscpartners.patientcrossroads.org/

Any other ideas?

pscpartners.ca/35-2/
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bit.ly/2PH9PTn ...

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There are two clinical trials for PSC patients recruiting or soon-to-be recruiting in Canada! More info at www.pscpartners.ca/clinical-trials. Speak to your doctor if you are interested in finding out if your are eligible.

If you would like to receive direct notice to your email inbox of clinical trials for which you may be eligible, please consider joining the PSC Partners Patient Registry www.pscpartnersregistry.org
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Here is the open letter from Steve Ludzik's wife about their public appeal for a donor. Please share widely. ...

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Giving Tuesday is tomorrow! Dubbed โ€œOpening day of the giving seasonโ€, itโ€™s a time where charities, companies and individuals join together and rally for favourite causes. In the same way that retailers take part in Black Friday, the giving community has come together for GivingTuesday.

Our year-end season has been issued a matching challenge grant! Gifts to PSC Partners Seeking a Cure Canada by 3/31/2019 will be matched, up to $30,000!

Please consider donating here: my.charitableimpact.com/campaigns/psc-partners-canada-year-end-campaign

And if you'd like to kick off your own campaign this year, visit www.pscpartners.ca/fundraising for a toolkit to help!
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Canada PSC people - the 2nd issue of the Loon Duct is about to go out. Please join the Canada mailing list here! Good information coming about how to help us meet our year-end fundraising goal! We'll need all the help we can get to make the matching grant challenge!

vr2.verticalresponse.com/s/websitesignupform18691697673980
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4 months ago

PSC Partners Seeking a Cure Canada

On September 29th PSC Partners Canada hosted a Meetup in Toronto, Ontario. Attendees from all over Ontario were joined by guest speakers Dr. Gideon Hirschfield, from the Toronto Centre for Liver Disease at Toronto General Hospital and Dr. Sonya MacParland, UHN Researcher. Albert Fung from the Toronto Video Atlas of Surgery also attended and provided attendees with a rare opportunity to take part in a virtual liver experience. The meetup was a great success with help from our many volunteers and our sponsors: CymaBay Theraputics, Turtledove Bakery, Passion for Desserts and the Centre for Social Innovation. ...

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We are trying something new for this year's end-of-year fundraising push. If you are shopping, please consider using the PSC Partners Canada amazon.ca affiliate link to generate up to 10% of your shopping for PSC Partners Canada.

Visit pscpartners.ca/amazon-affiliate/ to get started!
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We are very pleased to be representing PSC patients this weekend at the CASL autoimmune liver disease meeting in Ottawa.

There are a lot of very smart people working on PSC gathered together in this room. A source of great hope!
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The future of transplant science from TO! Tomorrow livestream...Join the live stream! Behind the Scenes:
November 19, 2019 | 2 p.m. โ€“ 3 p.m.

Youโ€™re invited to join the live stream for our Behind the Scenes event:
The future of transplant science: pushing the boundaries of medicine to help more people LIVE ON.

Youโ€™ll hear from world-leading scientists at the UHN Transplant Program.

RSVP now โ†’ tgwhf.ca/livestream
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Good news everyone -- next Friday's Lunch & Learn is on as originally scheduled! UHN Bioethicist, Jed Gross, will present on Emerging Ethical Issues in Living Organ Donation.

Submit questions or topics you would like Jed to address by commenting on this post or send us a private message.

We'll be streaming Jed's presentation (no lunch this time ๐Ÿ˜‰), as well as the Q&A session, on Facebook Live at 12:15 PM. You can submit questions in real time via Facebook Live (but if you want a really juicy answer, we suggest submitting in advance!).

If you're in Toronto on November 15 and want to join us in person, don't forget to register ahead of time. This event, and lunch, are FREE. See you on the 15th!

www.eventbrite.ca/e/living-organ-donation-ethics-round-table-discussion-tickets-76976997271
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PSC Mythbusters, and a few Canadian mythbusters as well. Thank you Dr. Gulamhusein for representing We the North at the 2019 PSC Partners Conference.PSC Myth Busters...Recorded at PSC Partners 2019 Conference. Check out presentation by Aliya F. Gulamhusein, M.D., MPH, Toronto General Hospital. www.youtube.com/watch?v=jZ7XlhCu360&feature=youtu.be&t=45m10s ...

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Paediatric PSC Meeting at SickKids in Toronto.

9:30am-12:00pm November 30.
Please see attached flyer for details and RSVP ASAP (Nov 1 deadline).

PSC Partners community members will be presenting on transitioning to adult care and giving the patient experience.

Many thanks to Drs. Kamath & Ricciuto for presenting this resource to the PSC patient community! And PSC Partners community members Dilshad Kassam-lallani and Afsana Lallani for sharing their experiences. Kudos to Afsana Lallani for taking the initiative to start encouraging and building resources for paediatric PSC patients!
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The hardworking and dedicated staff and leadership at US HQ! Come to the conference in April and meet them in person!From the Colorado-based staff at PSC Partners Seeking a Cure, happy PSC Awareness Day. #PSCaware Jennifer Snead Chavez Meegan Carey Ricky Safer Katherine Wilson Schultz Raquel Valerio
Want more info. about PSC Partners? We've got you covered.
pscpartners.org/
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PSCers on this 2019 Awareness Day, one of the most impactful things you can do is join the PSC Partners Patient Registry - paediatric, pre-transplant, post-transplant: all are needed from anywhere in the world.

Here's Patient Registry Director Rachel sporting PSC Partners gear. Thank you Rachel Ciaves for the amazing work you do.
www.pscpartnersregistry.orgHappy PSC Awareness Day from Rachel, the Registry Director for PSC Partners Seeking a Cure. #PSCaware
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"There is great progress and there is HOPE!" Thank you to PSC Partners CEO and fierce leader Ricky Safer. ...

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PSC Partners Canada community: Please join us today in raising the profile of PSC! Facebook may suggest you add a donation button. If you are feeling like asking your community to financially support PSC Partners Canada, please use this link to our online donation page.

tinyurl.com/pscaware

HELP MAKE PSC AWARENESS DAY A SUCCESS.

HEREโ€™S HOW:

TAG PSC PARTNERS CANADA:
When we post facts on the PSC Partners Facebook (@PartnersSeekingACureCanada), Twitter (PSCPartnersCa) pages, share them on your social media pages, use the #PSCaware, and tag PSC Partners, and PSC Partners Canada.

FRAME FACEBOOK PHOTO:
Update your Facebook profile picture with our Awareness Day Frame. Go to www.facebook.com/profilepicframes, search for PSC Awareness 2019, and click Use as Profile Photo. You can schedule the frame to be removed on November 1, 2019.

UPDATE PROFILE PHOTOS:
Use the 2019 PSC Awareness logo as your profile photo on other social media outlets and when posting other things about PSC and PSC Partners today.

POST VIDEO OF YOURSELF:
Spread awareness about PSC by posting a short video of yourself on social media answering the question, โ€œWhat is one thing you wish people knew about PSC?โ€ Videos should be posted on October 29. Be sure to tag PSC Partners and use #PSCaware. Or share the PSC Partners 2019 Awareness Day video youtu.be/UKMD7AMdEN0.

WEAR PSC PARTNERS GEAR:
On October 29, wear PSC Partners gear. Post a photo of yourself, tag PSC Partners, and include #PSCaware.
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This year's PSC Awareness Day video! Thank you Emmett and family. Featuring some Canadians, and a dedicated Canadian researcher-clinician can be spotted in the conference shots. PSC knows no borders. Please share with friends and family and use #PSCAware.https://youtu.be/UKMD7AMdEN0Today is PSC Awareness Day! Watch our new video that follows 19-year-old Emmett as he learns more about his primary sclerosing cholangitis (PSC) diagnosis. Please share this video with friends and family to help educate about PSC. Tag PSC Partners Seeking a Cure and use #PSCaware.
youtu.be/UKMD7AMdEN0
(Video was done by the very talented Niall McKay, a PSCer from Ireland. PSC knows no borders.)
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And in Canada... ...

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Thank you Raptors for using the championship to bring the spotlight to the amazing success of transplantation.
This is a nice piece about the progress being made at Torontoโ€™s transplant program in using HepC positive donor organs. Post-transplant PSCer and Raptor fan Rob caprured in this clip enjoying the fun with his family.

Transplant patients get visit with NBA championship trophy
Some long-time Raptors fans and transplant patients at Toronto General Hospital got an up close and personal visit with the Larry O'Brien Championship Trophy Friday. Faiza Amin with how Raptormania took over the hospital hallways.
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Facebook followers: if you are feeling a need to stay off Facebook for any reason, but want to stay in the loop on PSC Partners Canada, you can see what's been posted on the PSC Partners Canada website. No need to log into Facebook to see these links.

pscpartners.ca/fbfeed/
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Please share to make sure your community is #PSCaware.

For more information, visit the PSC Awareness page: pscpartners.org/awareness/
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Thank you!! Happy Thanksgiving all.

We are grateful for our worldwide PSC community and for the ongoing work to understand PSC and find treatment and a cure.Happy Thanksgiving to all the wonderful Canadians in our community. We are thankful for you!
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Please share, so everyone can be #PSCaware. (Hey, that rhymes. I'm a poet and didn't know it!) ...

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#PSCaware ...

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#PSCaware ...

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PSC Awareness Day is October 29, 2019! During the weeks leading up to the big day, we can use your help building excitement.

Hereโ€™s How You Can Help:
When we post facts here or on Twitter (@PSCPartnersCa), share them on your pages, use the #PSCaware, and tag PSC Partners and PSC Partners Canada.

Update your Facebook profile picture with our Awareness Day Frame. Go to www.facebook.com/profilepicframes, search for PSC Awareness 2019, and click Use as Profile Photo. You can schedule the frame to by removed on November 1, 2019.
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We are working hard on behalf of Canadian PSCers. Captured here, Canadian Board Member Rachel Ciaves at the Canadian Liver Meeting learning about recent research in Canada. ...

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Oct 6 patient input opportunity in Calgary!

We want to improve patient experience for IBD Patients.
SO
We need your voice!

WE are a group of patient student intern researchers, either living with IBD or who have family with IBD. WE are inviting you to drive research in improving IBD patient experience and outcome.

By Patients - With Patients - For Patients

How can you help?
By participating in a FOCUS GROUP or INDIVIDUAL INTERVIEW.
Share your experiences about what resources IBD patients need after diagnosis.

Interested, have questions?

Please contact Marcia Bruce marcia.bruce@ucalgary.ca.

Focus Group Details are as follows:
โ€ข Estimated maximum time commitment would be 4 hours on Sunday, October 6th, 2019 starting at 12:30 pm at Fish Creek Library in Calgary.
โ€ข One-time commitment with an opportunity for additional participation in the future.
โ€ข In person participation is preferable but online participation can be accommodated.
โ€ข Snacks and refreshments will be provided. Parking is free.

Individual Interview Details are as follows:
โ€ข Estimated maximum time commitment 1-2 hours.
โ€ข Interviews will be conducted one-on-one via telephone, online or in person.

IMAGINE is a Canada wide research initiative spearheading qualitative and quantitative research in gut-brain connections and is sponsoring our team.

The Patient and Community Engagement Research (PaCER)
program, is part of the Oโ€™Brien Institute for Public Health at the University of Calgary and in partnership with Alberta Health Services through the Strategic Clinical Networksโ„ข, is committed to transforming the role of patients in health care through engagement research.

This study has been approved by the University of Calgary Conjoint Health Research Ethics Board. Ethics ID:REB19-1007
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Did you know? You can designate PSC Partners Canada for gifts you make through your workplace campaign.

It is United Way and Benevity Workplace Campaign season. Consider asking your colleagues to help support this Canadian charity that you support!

You need:
Charity Name: PSC Partners Seeking a Cure Canada
ID: 811905165RR0001
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Good News! On October 2, 2019, there are 2 trials ongoing in Canada!

How to find clinical trials in Canada for PSC.

Visit the Government of Canada's clinical trial database: health-products.canada.ca/ctdb-bdec/index-eng.jsp

Search terms:
Medical Condition: primary sclerosing cholangitis
Trial Status: ONGOING

And see the comments below for additional trials recruiting in Canada!
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