Upcoming/Current :
October 18-20, 2024: 20th Anniversary PSC Partners Annual Conference (Phoenix, Arizona, USA). Conference Registration Event flyer to share with friends/family and to bring to your medical provider to get the word out.
August 17 2024 @11am: Summer Meetup in Richmond, BC. Walk and picnic in Steveston in Richmond. Contact Sandy at sandra@pscpartners.ca for more information and to RSVP.
August 24 2024 ! 1pm: Summer Meetup in Toronto ON. Walk and picnic at Woodbine Beach Park in Toronto. Contact Jessica at office@pscpartners.ca for more information and to RSVP.
June 1 – August 31 2024: Canada WALK83.01 for PSC. Join us for a fun opportunity to do something concrete that will move us towards a cure. No matter where you live in Canada or how fit you are, you can join the Canada Walk 83.01 for PSC Research. We call it a WALK, but you can walk 83 blocks or jog 83 km or bike 83 miles…YOU set the goal and ask your friends to support you. We have letters on our WALK83.01 website to give you ideas about what to send or post to your friends and family. You can explain that since it is a rare disease we have to work extra hard for our research dollars and ALL THE MONEY RAISED GOES DIRECTLY TO PSC RESEARCH!
Why did we choose 83.01 as a goal? Because the unique disease code for primary sclerosing cholangitis (PSC) is K83.01. Click HERE to set up a personal WALK83.01 fundraising page or make a donation. The Canada WALK83.01 Canada runs now through August 31!
Past Events:
June 1 2024; Paediatric PSC Day, A Canadian PSC Patient and Family Event.
Kids and teens get PSC too. And we live in amazing times where the tools exist to help paediatric patients and their families find each other and get through it together! June 1st in Toronto, Canada, PSC Partners Seeking a Cure Canada is hosting its first Canadian Paediatric PSC Day with co-host Dr. Amanad Ricciuto from the Hospital for Sick Children.
For more event information, please visit: https://go.pscpartners.org/RegisterPaedsDay2024 and email office@pscpartners.ca with any questions.
Please join us! This is an opportunity for paediatric PSC patients and their families to meet others in the community.
The agenda will include talks by specialists from SickKids, Toronto Centre for Liver Disease, and University Health Network / University of Toronto on
- Living with PSC
- PSC and IBD basics
- Canadian patient-partnered paediatric PSC-IBD study
- Peer group time – an opportunity to connect with others in the same peer group
- Mental health and living with a chronic condition
- Lots of Q&A time with specialists – see speaker list.
Keep your eyes on our social media pages and your inbox for updates!
Past Events:
October 14 & 15, 2023; What the Cell?!, Exploring PSC on a Cellular Level, A Canadian PSC Patient Event
View slideshow of the event. Recordings from session will be posted as soon as possible.
Please join us for a Canadian PSC Partners patient event! A weekend of learning about PSC and about the patient-partnered collaborative research project in Toronto that is exploring PSC on a cellular level. Speakers from Ajmera Transplant Centre, Toronto Centre for Liver Disease, SickKids, and the University of Toronto will be presenting. This event will also provide patients and caregivers with opportunities for peer support and community building. Don’t miss this rare chance to ask questions and meet others with PSC. In-person registration is now closed, but the event can be attended remotely via zoom. Registration required – see links above.
Travelships to offset travel and hotel expenses are available on a first come first served basis. Travelship application is closed.
This project has been made possible in part by grants from the Chan Zuckerberg Initiative DAF, an advised fund of Silicon Valley Community Foundation, CIHR, and Medicine by Design at University of Toronto.
We are grateful for the following corporate sponsorships: Gold level – Mirum Pharamceuticals, Silver Level – Escient Pharmaceuticals.
AGENDA – Arts and Letters Club, 14 Elm Street Toronto and Online via Zoom
Day 1 – Educational Event: Saturday October 14 8:30 AM – 4:00 PM
8:30 AM 9:00 AM Check-in Open
9:00 AM 10:15 AM Session 1: Welcome and PSC Basics
10:15 AM 10:45 AM Break
10:45 AM 12:15 PM Session 2: PSC Single Cell Studies
12:15 PM 12:20 PM Housekeeping
12:20 PM 1:35 PM Lunch and Peer Group Meet & Greet
1:35 PM 2:30 PM Session 3 Transplantation; Mental Health in PSC
2:30 PM 2:45 PM Break
2:45 PM 4:00 PM Session 4: Looking Forward: PSC Partners Research Strategy, Clinical Trials and Studies, Patient-funded Research and Researchers
Day 1 – Dinner and Social Event: Saturday October 14 6:00 PM – 9:00 PM
Day 2 – PSC Community and Peer Support Event: Sunday October 15 10:00 AM – 1:00 PM
9:30 AM 10:00 AM Doors Open
10:00 AM 10:30 AM Session 1: Peer Support in Liver Disease Study Information, Peer Group Information
10:30 AM 12:00 PM Peer Groups
12:00 PM 12:20 PM Break
12:20 PM 2:00 PM Report Out and Event Close
COVID tests available and masks requested Saturday and Sunday except when consuming food or drink.
SUPPORT TO ATTEND!
Translation: French, ASL, and possibly other languages upon request will be available. Please indicate preference during your registration.
Other accessibility: Please let us know if you have accessibility needs.
Please email office@pscpartners.ca for more information and to confirm childcare details and space and translation availability.
Please sign up for the Loon Duct newsletter and follow PSC Partners Canada on Facebook and twitter to receive notice of upcoming events!
